A dad is on a crusade–not only to help his daughter but to help others facing a similar challenge.
On December 17th, 2013, A.J. Tesler’s daughter Magnolia was diagnosed with Rett Syndrome.
Rett Syndrome is very rare, affecting about 1 in 10,000 live female births.
Magnolia has already lost her ability to talk.
“Over time, it could take my daughter’s ability to walk, talk, use her hands and eat. She could experience a slew of maladies including seizures, breathing abnormalities, scoliosis and even sudden death,” says A.J. Tesler.
He says there are clinical trials right now that show promise in reversing the affects of this disease.
But he says they need funding.
So he created a video that features his family, and specifically his daughter, with the hope of raising big money.
The video is on YouTube, and he launched a GoFundMe campaign with a goal of raising $100K.
“You can literally save lives. Any amount can help get us there. Any amount you can afford to give can potentially save my daughter’s life and thousands like her,” says Tesler. “If we reach our goal, we’ll be able to make a clinical trial happen. And that’s one more chance for my daughter to beat this thing.”
Magnolia’s dad told The Huffington Post that he will be donating all of the money raised to the International Rett Syndrome Foundation.